Showing posts with label lymphoma. Show all posts
Showing posts with label lymphoma. Show all posts

Saturday, March 12, 2011

Misleading Data on Breast Implant-Related Cancer Removed from Site

Another attempt by mainstream medicine to keep women uninformed about health risks has been stymied.
In February 2011, Public Citizen alerted the FDA that the presidents of two leading plastic surgery organizations – the American Society of Plastic Surgeons (ASPS) and the American Society for Aesthetic Plastic Surgery (ASAPS) – urged members to inaccurately downplay the significance of recent evidence about the risks of breast implant-related cancer when speaking to female patients during a recent members-only webinar posted on the ASPS and ASAPS websites. Such communications represented a deplorable attempt to trivialize the significance of the findings of increased numbers of cases of a rare form of cancer, called anaplastic large cell lymphoma (ALCL), in women with breast implants. Public Citizen called on the FDA to stop this deliberately misleading messaging campaign, the goal of which apparently was to keep women in the dark about the dangers of breast implants so they will continue to ask for them. Complete article

New Leadership:  Karuna R. Jaggar appointed Executive Director of Breast Cancer Action.
San Francisco, CA— After an exhaustive search the Breast Cancer Action board of directors announced Karuna R. Jaggar as the organization’s new executive director.  “We feel extremely proud and excited about our new Executive Director,” said BCA board president Claudia Cappio. “Karuna has worked in non-profit leadership and capacity building for 15 years advocating for women’s rights and socio-economic empowerment.  She uncompromisingly challenges inequities at every level and this will continue to be her focus as she leads Breast Cancer Action.”

Jaggar has a personal passion to end the breast cancer epidemic fueled by her commitment to social justice and her own experiences as a patient advocate.  “My closest family members have grappled with three breast cancer diagnoses during the last ten years,” Jaggar stated.  “It is not enough to educate ourselves and try to make “good” lifestyle choices. We need systemic change to end this breast cancer epidemic.”

Jaggar is driven by the reality that social injustices and environmental factors put each of us at risk of developing breast cancer, regardless of family medical history.  “Every woman affected by breast cancer should possess the power and knowledge to make informed decisions that enable them to take control of their healthcare,” Jaggar said.  “This includes a women’s right to access affordable treatment options, to create individualized treatment plans, and to make healthcare decisions centered on personal values and priorities.”

Under Jaggar’s leadership, BCA will remain uncompromising on issues of health, social and environmental justice:  “We will continue to fearlessly and relentlessly tell the truth about breast cancer,” Jaggar asserted.

Breast Cancer Action, the San Francisco based national watchdog of the breast cancer movement, is known for a commitment to understanding breast cancer through a social justice and health equity lens.  The organization demands greater corporate accountability and better treatment options for patients; pays keen attention to the social inequities that cause differences in breast cancer incidence and outcomes; secures changes at the policy level to reverse involuntary exposure to carcinogens; and works to shift  the balance of power at the FDA away from pharmaceutical companies towards patient interests. 

Prior to her role at BCA, Jaggar was the Executive Director, East Bay of the Women’s Initiative for Self Employment where she worked to reverse inequities among low-income women and women of color.  Jaggar replaces Barbara Brenner who retired at the end of 2010.

Friday, August 13, 2010

Hushed Up: Disease causes

From Edward Priestley.
The Christie Hospital in Manchester, where I gave bone marrow for research over 20 years ago said recently they hope to increase survival rates for lymphatic leukaemia from about 20% to 40%. Whether this will actually happen remains to be seen.
These are not survival rates the public are generally led to believe.
I believe many of those raising funds for leukaemia research must be aware there are known causes (toxic chemicals, medical drugs, radiation) but they do not speak out. I know from my own and others' experiences patients and their families are intimidated by the not to speak out. It was one of the first things my consultant at Halifax told my wife and I after I was diagnosed with aplastic anaemia - "Do not bandy your condition about".
So as soon as I was able, nearly a year later, when I 'escaped' from Hammersmith Hospital, I wrote articles in the media on causes. This resulted in many local sufferers contacting me. Every one of their conditions had an obvious cause when you investigated.
There are frantic efforts to improve blood disease treatment because of the increase in incidence, so the causes do not have to be admitted.
The refusal by the UK Government to warn children of these dangers of solvent abuse on leaflets shows just how resistant they are to warning the public of the dangers.
Speaking of the many medical drugs which cause leukaemia is taboo in the media. Professor Judith Marsh wrote to me in 2006 saying she and 11 other of the world's leading experts, most of whom I know well, could not get a research paper published. They were very disappointed because the paper included information on the causes of aplastic anaemia and leukaemia.
She, like the rest, still says the cause is unknown in about half of cases, but they never tell patients the causes even when they are 100% sure of it. When you investigate causes you find that nearly 100% of patients have no idea of the causes, which like my own case, was never investigated by them.
Ref. Harrison's Principals of Internal Medicine "The percentage of cases of aplastic anaemia where a cause is found depends on the vigour with which a cause is sought.".
In other words, if you never look for a cause you never find one. You could say the same for many medical drug, chemical and radiation induced conditions like Parkinson's, most cancers etc.

 
Design by Free WordPress Themes | Bloggerized by Lasantha - Premium Blogger Themes | Macys Printable Coupons